Birthdays were always special in my family growing up. Traditions included picking dinner from wherever you wanted, a cake decorated with your favorite cake flavor and frosting, presents and lots of love. I always looked forward to my birthday. I still look forward to my birthday. I like to start the celebration early--by several days.
Because my birthday falls early enough in the month, I never got the combined Christmas/Birthday celebration present. I know some of my fellow December birthday buddies have not always been so lucky. No one should have to endure a combined present.
This year is even more special than any other birthday. Back in July when I was first diagnosed, I wasn't sure how many more I would have. I still don't know for sure how many I will have. Life is so precious. When you are faced with your own mortality, the everyday is cause for celebration. Special occasions, like birthdays, are worth the extra the hoopla. I look forward to turning another year older. So many have been robbed of this because of cancer. I am so thankful I have been given more time and another birthday to celebrate. When I blow the 35 candles out on my cake this upcoming Saturday, I will wish for a cure for all cancers.
Celebrate the everyday. Tell those you love you love them. Forgive. Move forward. Do good. And eat cake! Lots and lots of cake!
Wednesday, December 3, 2014
Wednesday, November 26, 2014
Thankful
I was talking today with a friend at work about life as child. We talked about how easy being a kid can be. Your days are pretty routine with no real responsibilities like bills and a job. We talked about how we would look forward to holiday breaks and family meals. I can easily remember what my life was like when I was my daughter's age. I even remember making my first paper snowflake with glitter in my first grade class! We probably made them closer to the first day of winter, but I still remember.
I can guess the things I would have said I was thankful for when I was 6. My parents would have topped the list, followed by my favorite toys and popcorn. I know I would have mentioned the Macy's parade. It was something my dad and I would watch partly together until we needed to leave for dinner. Someone would have suggested my 4 year-old brother and I would have rolled my eyes and probably said something snarky under my breath. I know the Thanksgiving holiday would have been spent at one of my grandparent's houses with all my cousins, aunts and uncles. The ladies making amazing things happen in the kitchen and catching up on family news. The men gathered around the television watching a football game or some kind of pre-game show. Cousins all over playing games and making noise. As think of it now, I can hear my grandmother laughing in the kitchen as my mother recants a story of something I or my brother probably did. Embarrassed then, but proud now that we could give her something to laugh about. I would love to just go back in time to drink in the love, laughter and warmth spent at those past family gatherings around the table--even the kids table.
Over the years traditions and times have changed. People have moved farther away and now have families of their own. It makes it harder to continue the same routines I grew up with. For my little family of three we started our own little Thanksgiving tradition and included my parents in on it. I love cooking Thanksgiving food, especially the turkey and gravy. I know others have anxiety of cooking such a huge bird, but I live for it! I love talking to others on how they brine and cook theirs.
We had few dinners that we invited friends and their kiddos to join us. There have been a few years we have celebrated with my father-in-law and his dear girlfriend and her family. All have been full of love, laughter and warmth.
This summer brought so much unknown to us. My husband tore his ACL and meniscus and ended up having to have surgery. I started a new job that included being on call during holidays. And then the worst happened. I was diagnosed with cancer. I went for the gold on that, too. I skipped the early stage and went straight to stage IV. (Stage IV means is has metastasized/spread to other areas of the body) During those late summer days I wasn't thinking about making a turkey. I was thinking, "will I be here to celebrate?" I had no idea how my life would play out over the next four months after my initial diagnosis. I knew what my nurse (which one of these days will get her own entry on my blog because she is incredible and everyone should know about her) kept telling me about the chemo combo for my triple positive cancer. Even knowing the science facts, everyone body responds uniquely to treatment.
The day my doctor told me my labs showed my liver blood test was normal I was on cloud nine. It was a small indicator things were headed in the right direction. But I still needed the CT scan and I was nervous what it would reveal.
Today as I replay the scan results in my head I still tear up. NO CANCER FOUND. 4 rounds of chemo, 10 radiation treatments, prayer, tears, worry, fighting and NO CANCER FOUND. I can easily tell you a million and one reasons why I am thankful this year. I am bummed I can't make the turkey, but I am okay with that.
This battle with cancer has opened my eyes to what is really important. It has honed in what truly matters in this world. I have been able to cut out so much negative and petty things. I don't take anything for granted like I used to. Everything is precious. I am not in such a rush. I also don't put up with crap either.
It has also shown me that Thanksgiving and calling into remembrance what I am thankful for is not a once a year event. For me, Thanksgiving is everyday. I am thankful everyday for amazing blessings that fall from Heaven. I am grateful for the small events that take place daily. I could easily list a million and one things that I am thankful for and not double up.
While I don't see cancer as a blessing, I am thankful to the wake-up call that came with it. I can now really live and truly be thankful.
I can guess the things I would have said I was thankful for when I was 6. My parents would have topped the list, followed by my favorite toys and popcorn. I know I would have mentioned the Macy's parade. It was something my dad and I would watch partly together until we needed to leave for dinner. Someone would have suggested my 4 year-old brother and I would have rolled my eyes and probably said something snarky under my breath. I know the Thanksgiving holiday would have been spent at one of my grandparent's houses with all my cousins, aunts and uncles. The ladies making amazing things happen in the kitchen and catching up on family news. The men gathered around the television watching a football game or some kind of pre-game show. Cousins all over playing games and making noise. As think of it now, I can hear my grandmother laughing in the kitchen as my mother recants a story of something I or my brother probably did. Embarrassed then, but proud now that we could give her something to laugh about. I would love to just go back in time to drink in the love, laughter and warmth spent at those past family gatherings around the table--even the kids table.
Over the years traditions and times have changed. People have moved farther away and now have families of their own. It makes it harder to continue the same routines I grew up with. For my little family of three we started our own little Thanksgiving tradition and included my parents in on it. I love cooking Thanksgiving food, especially the turkey and gravy. I know others have anxiety of cooking such a huge bird, but I live for it! I love talking to others on how they brine and cook theirs.
We had few dinners that we invited friends and their kiddos to join us. There have been a few years we have celebrated with my father-in-law and his dear girlfriend and her family. All have been full of love, laughter and warmth.
This summer brought so much unknown to us. My husband tore his ACL and meniscus and ended up having to have surgery. I started a new job that included being on call during holidays. And then the worst happened. I was diagnosed with cancer. I went for the gold on that, too. I skipped the early stage and went straight to stage IV. (Stage IV means is has metastasized/spread to other areas of the body) During those late summer days I wasn't thinking about making a turkey. I was thinking, "will I be here to celebrate?" I had no idea how my life would play out over the next four months after my initial diagnosis. I knew what my nurse (which one of these days will get her own entry on my blog because she is incredible and everyone should know about her) kept telling me about the chemo combo for my triple positive cancer. Even knowing the science facts, everyone body responds uniquely to treatment.
The day my doctor told me my labs showed my liver blood test was normal I was on cloud nine. It was a small indicator things were headed in the right direction. But I still needed the CT scan and I was nervous what it would reveal.
Today as I replay the scan results in my head I still tear up. NO CANCER FOUND. 4 rounds of chemo, 10 radiation treatments, prayer, tears, worry, fighting and NO CANCER FOUND. I can easily tell you a million and one reasons why I am thankful this year. I am bummed I can't make the turkey, but I am okay with that.
This battle with cancer has opened my eyes to what is really important. It has honed in what truly matters in this world. I have been able to cut out so much negative and petty things. I don't take anything for granted like I used to. Everything is precious. I am not in such a rush. I also don't put up with crap either.
It has also shown me that Thanksgiving and calling into remembrance what I am thankful for is not a once a year event. For me, Thanksgiving is everyday. I am thankful everyday for amazing blessings that fall from Heaven. I am grateful for the small events that take place daily. I could easily list a million and one things that I am thankful for and not double up.
While I don't see cancer as a blessing, I am thankful to the wake-up call that came with it. I can now really live and truly be thankful.
Saturday, November 22, 2014
Strength in numbers
Dealing with life or death situation is very overwhelming. The various emotions your mind attempts to process is draining. Having people in your corner to help you as you go through it can ease the chaos. I know I have mentioned my "Team Mimzy", which is made of many friends and family members that have chosen to love me through this tragic time in my life. They are the people that have gone out of their way to show me how much they care by providing for me in amazing ways. Some of have sent cards and gifts and others have been able to go with me to appointments. I had a friend that made one of my favorite desserts because I posted on facebook I was craving it. I still can't believe she did that for me. It is just humbling to receive so much love and compassion from people. I could go on for days about the things said and done for me over the last few months. I am grateful for each act of kindness that has been bestowed on me and my family.
I did write about those that have walked away from me and my family because they can't handle the cancer. Some had to be kicked off cancer island because it was obvious they weren't able to handle cancer. I won't go into all of it again, but as much as it hurts they can't provide the support we need as cancer patients, the hole they leave is always filled by someone that is ready and willing to help. We are much better off.
The unfortunate thing is even with all the help from these incredible people they can't understand exactly what we are feeling. Even sadder than that is no one can. Our battle with cancer is always as unique as the individual fighting it. During this fight, I have often felt isolated in my situation. To find another metastatic breast cancer patient (cancer spread to the liver and bones) with triple positive invasive ductal carcinoma that is under 40, chemo treatment of Herceptin, Prejeta and Taxotere, married with a young child has been hard. I have yet to meet one in person. It can be difficult navigating the stories of survivors that found a lump, had it removed and have been cancer free for 20 years. It is easy for me to often feel alone.
One thing that has helped though is connecting with other cancer warriors, especially those dealing with breast cancer. Yes, we all have our own unique struggle and not everything is the same, but the feelings of fear, anxiety and sadness are. Even those that have battled another type of cancer, but were also stage IV have been encouraging to talk to. They, too, know the feelings and fears I face even if I am dealing with different circumstances.
I have found a few local support groups which have been great in meeting others. It also helps with questions with treatment. I have been struggling with taking my pain medication. I am just not one that likes to take medication. But after talking to different cancer patients they reminded me how important it is to help my body by taking the medication. Pain can put extra stress on cancer patient and meds can alleviate that stress. I have since gotten over not taking my medication and just take it as needed. One day I will not need it, so taking it is temporary. It was nice to talk others that have walked in my shoes, though.
My faith is a huge part of my life and very much what is carrying me through this war with cancer. I found another support group for breast cancer patients/survivors that is built upon faith. It has helped being able to share our faith and having someone pray with you, especially during the unknown times like the days leading up to my scan results. As Christians we are called to, "Carry each other's burdens, and in this way you will fulfill the law of Christ." (Galatians 6:2)
I have also participated in a fun night out and was able to meet up with several members of one of the groups. It was nice to meet others around my age and knowing they get how hard it is to be mother while battling cancer. It was also fun to do something nice for me. I have a hard time doing that. I am so focused on beating cancer I forget to do something just for me sometimes.
It can be hard finding the right fit with support groups sometimes. I will not participate in groups where the majority is negative and constantly focused on the bad. I understand others may appreciate that type of group so they can un-bottle those feelings they have kept hidden from others and it helps them feel better in sharing those angry feelings. I will not fault with another cancer patient who chooses to use this type of method if that is what helps them get through this horrible time in their life. However, for me, I have enough negative stuff and I refuse to focus on it.
It may take time in finding the right fit, but it well worth the time in doing so. It is well worth making friends with other patients, even if their journey is a bit different. They may provide a different perspective that can be very helpful to you as you are going through your own battle.
I think the best part of having a team of friends, family and other cancer patients/survivors is knowing you are not alone.
I did write about those that have walked away from me and my family because they can't handle the cancer. Some had to be kicked off cancer island because it was obvious they weren't able to handle cancer. I won't go into all of it again, but as much as it hurts they can't provide the support we need as cancer patients, the hole they leave is always filled by someone that is ready and willing to help. We are much better off.
The unfortunate thing is even with all the help from these incredible people they can't understand exactly what we are feeling. Even sadder than that is no one can. Our battle with cancer is always as unique as the individual fighting it. During this fight, I have often felt isolated in my situation. To find another metastatic breast cancer patient (cancer spread to the liver and bones) with triple positive invasive ductal carcinoma that is under 40, chemo treatment of Herceptin, Prejeta and Taxotere, married with a young child has been hard. I have yet to meet one in person. It can be difficult navigating the stories of survivors that found a lump, had it removed and have been cancer free for 20 years. It is easy for me to often feel alone.
One thing that has helped though is connecting with other cancer warriors, especially those dealing with breast cancer. Yes, we all have our own unique struggle and not everything is the same, but the feelings of fear, anxiety and sadness are. Even those that have battled another type of cancer, but were also stage IV have been encouraging to talk to. They, too, know the feelings and fears I face even if I am dealing with different circumstances.
I have found a few local support groups which have been great in meeting others. It also helps with questions with treatment. I have been struggling with taking my pain medication. I am just not one that likes to take medication. But after talking to different cancer patients they reminded me how important it is to help my body by taking the medication. Pain can put extra stress on cancer patient and meds can alleviate that stress. I have since gotten over not taking my medication and just take it as needed. One day I will not need it, so taking it is temporary. It was nice to talk others that have walked in my shoes, though.
My faith is a huge part of my life and very much what is carrying me through this war with cancer. I found another support group for breast cancer patients/survivors that is built upon faith. It has helped being able to share our faith and having someone pray with you, especially during the unknown times like the days leading up to my scan results. As Christians we are called to, "Carry each other's burdens, and in this way you will fulfill the law of Christ." (Galatians 6:2)
I have also participated in a fun night out and was able to meet up with several members of one of the groups. It was nice to meet others around my age and knowing they get how hard it is to be mother while battling cancer. It was also fun to do something nice for me. I have a hard time doing that. I am so focused on beating cancer I forget to do something just for me sometimes.
It can be hard finding the right fit with support groups sometimes. I will not participate in groups where the majority is negative and constantly focused on the bad. I understand others may appreciate that type of group so they can un-bottle those feelings they have kept hidden from others and it helps them feel better in sharing those angry feelings. I will not fault with another cancer patient who chooses to use this type of method if that is what helps them get through this horrible time in their life. However, for me, I have enough negative stuff and I refuse to focus on it.
It may take time in finding the right fit, but it well worth the time in doing so. It is well worth making friends with other patients, even if their journey is a bit different. They may provide a different perspective that can be very helpful to you as you are going through your own battle.
I think the best part of having a team of friends, family and other cancer patients/survivors is knowing you are not alone.
Wednesday, November 19, 2014
No cancer found
Since the doctor told me I would be scheduled for my body scan, I have been worried about it. What would the results show? When the doctor told me that my blood test for the liver was normal, which was an indicator that things were working in the right direction, I was so happy. I finally had some shred of evidence that the treatment was doing its job.
I was nervous the day of the scan. I prayed that there would be some progress revealed by the scan. Some is better than no progress. I prayed it would reveal the treatment was working for my type of cancer. I prayed for my husband and daughter. I can't leave them. I will fight to the end to be with them for as long as possible.
I had to wait a week for results and it sucked. So many thoughts and worries preoccupied my mind. The what ifs made my stomach do extra flip-flops. I had a harder time sleeping. I felt on edge. I prayed and asked for peace.
We were predicted to get a major snow storm that day. I was already a ball of nerves and storm added to it. It ended up missing us and hitting Buffalo, NY.
Before I saw the doctor, I had my scheduled labs in preparation for chemo later in the week. My husband arrived soon after and then we were called back. The doctor was running a bit behind schedule, but it felt like forever. I felt sick to my stomach. I attempted breathing exercises, moving around, talking to my husband about other things, playing with my phone, nothing helped! When would the doctor get here!?
He finally came into the room and asked how I was. Um, nervous, worried and feeling like I am going to hurl. He told us that the CT scan (since the government says it is too soon for a pet scan) showed NO SIGNS OF CANCER. He did say there may be microscopic cancer cells that can not be detected by the CT scan. Because of this, I will continue my current treatments as they are. I will also be scheduled for a scan just of the bones so they can have baseline scan and check what he called cavities left by the cancer.
I cried. I asked him to repeat the report again. A huge weight had been lifted. I still felt like I might be sick, but I was ok. I could see the news had affected my husband, too. He hugged me and told me that he had already told me that the scan would be good news. That's him, though. He is always positive when it comes to this war on the cancer in my body. My rock, best friend and cheerleader. I am just going to say how amazing God is that he KNEW I would need someone like Bryan and he created my husband. I am so blessed. I totally got sidetracked and I am not even sorry. LOL
So then I had to call my family and close friends that I promised I would call and text, followed by telling my second family--my workmates. I called a meeting because I wanted to tell everyone at once. I wish our regional manager could have been there, though. It was emotional. I had a mini-breakdown the week before at work, so being able to share this awesome news just made everything sweeter.
The best re-telling of this fabbity-fab news was when I got to tell my daughter. When my husband and she came home I asked my husband if he had told our daughter. He said that he wanted to let me tell her. I called her over and told her I had something important to tell her. She asked if it was bad news. I told her I would explain and she crawled in my lap. I reminded her of how mommy had a scan to see if the treatment was working and we got the results. She had wide eyes as she looked at me. I started tearing up. I paused, took a breath and told her the good news. Her reaction was priceless. I then told her we would be going to Chuck E. Cheese to celebrate (something we as a family have always done even when it was just Bryan and I). She went crazy!
A day later I am still processing those words and remembering my doctor's face as he told me. I could tell he was happy to give me excellent news. I am not completely out of the woods. I may still have surgery and possible medications after chemo. I still don't know what the future holds for me, but I do know that my life will never be the same.
I was nervous the day of the scan. I prayed that there would be some progress revealed by the scan. Some is better than no progress. I prayed it would reveal the treatment was working for my type of cancer. I prayed for my husband and daughter. I can't leave them. I will fight to the end to be with them for as long as possible.
I had to wait a week for results and it sucked. So many thoughts and worries preoccupied my mind. The what ifs made my stomach do extra flip-flops. I had a harder time sleeping. I felt on edge. I prayed and asked for peace.
We were predicted to get a major snow storm that day. I was already a ball of nerves and storm added to it. It ended up missing us and hitting Buffalo, NY.
Before I saw the doctor, I had my scheduled labs in preparation for chemo later in the week. My husband arrived soon after and then we were called back. The doctor was running a bit behind schedule, but it felt like forever. I felt sick to my stomach. I attempted breathing exercises, moving around, talking to my husband about other things, playing with my phone, nothing helped! When would the doctor get here!?
He finally came into the room and asked how I was. Um, nervous, worried and feeling like I am going to hurl. He told us that the CT scan (since the government says it is too soon for a pet scan) showed NO SIGNS OF CANCER. He did say there may be microscopic cancer cells that can not be detected by the CT scan. Because of this, I will continue my current treatments as they are. I will also be scheduled for a scan just of the bones so they can have baseline scan and check what he called cavities left by the cancer.
I cried. I asked him to repeat the report again. A huge weight had been lifted. I still felt like I might be sick, but I was ok. I could see the news had affected my husband, too. He hugged me and told me that he had already told me that the scan would be good news. That's him, though. He is always positive when it comes to this war on the cancer in my body. My rock, best friend and cheerleader. I am just going to say how amazing God is that he KNEW I would need someone like Bryan and he created my husband. I am so blessed. I totally got sidetracked and I am not even sorry. LOL
So then I had to call my family and close friends that I promised I would call and text, followed by telling my second family--my workmates. I called a meeting because I wanted to tell everyone at once. I wish our regional manager could have been there, though. It was emotional. I had a mini-breakdown the week before at work, so being able to share this awesome news just made everything sweeter.
The best re-telling of this fabbity-fab news was when I got to tell my daughter. When my husband and she came home I asked my husband if he had told our daughter. He said that he wanted to let me tell her. I called her over and told her I had something important to tell her. She asked if it was bad news. I told her I would explain and she crawled in my lap. I reminded her of how mommy had a scan to see if the treatment was working and we got the results. She had wide eyes as she looked at me. I started tearing up. I paused, took a breath and told her the good news. Her reaction was priceless. I then told her we would be going to Chuck E. Cheese to celebrate (something we as a family have always done even when it was just Bryan and I). She went crazy!
![]() |
| It is mandatory that we get a family picture every time we go to CEC. Our daughter loves looking back on them. |
A day later I am still processing those words and remembering my doctor's face as he told me. I could tell he was happy to give me excellent news. I am not completely out of the woods. I may still have surgery and possible medications after chemo. I still don't know what the future holds for me, but I do know that my life will never be the same.
Monday, November 17, 2014
Cancer Thief
I know that I sort of touched on this in my bad day post, but I thought I would try to help those that have not been through cancer understand the battle that those of us living with cancer struggle with. I have since learned that even survivors deal with this battle even after the cancer is gone. It is a real struggle and it can be very hard to deal with.
The battle with cancer is not just physical. While we are fighting for our physical body, we are also fighting cancer in the emotional, spiritual and psychological realms. With every new ache or pain it comes with worry and fear is it the cancer? Is the cancer winning? It is spreading? Is the chemo and/or medications not working or no longer effective? Worry and fear are tools that the cancer uses to bring us down. It is attempting to use the fear to steal our joy and try to make us forget about the positives in our treatment and facts we do know to be true. This struggle can be daily for some, but it is always in the back of our minds.
It has always important to me to create memories for our daughter with special experiences as a family and even one on one with her parents. It is especially important to me now. What sucks is that when we come home from a fun day cancer likes to rear its ugly head and ask me when I will get to do it again? Will I be hear next year to take her to the event? Is this my last holiday with my family? My goal is that I will beat cancer and be here for as long as possible, but cancer likes to try to rob me from the happiness I have had making a new memory with my family with cluttering my head with worry. Then I pray.
During treatment there are many tests to see how well the medications are working and making sure the results are coming to the desired results. Even the basic blood count tests can be nerve-wracking. Holding our breath as we wait to hear the results. For the same reasons with every new ache or pain, we worry about what we will find out. It's hard not worry. And it drives me crazy when someone tells me not to--especially when that person hasn't had cancer or even some type of health scare that could even remotely be compared to cancer. Unless you have had to face your own possible mortality, you really don't understand why it is hard not worry. Tonight, in fact, is the evening before I receive the results of my first scan. This scan will tell us what kind of progress, if any, the treatment has had on my cancer. It will also determine the rest of my treatment. I would lie if I said I wasn't freaked out. Cancer likes to swoop in and turn my thoughts to "what ifs". I work myself up and then I am on edge. I have prayed A LOT when my scan was scheduled and since it was taken. I am praying now.
It is a constant battle when fighting cancer at any stage, even after the cancer has been determined to be out of your body. I find it important to remind myself of how far I have come in my treatment so far, the actual facts about my chemo combo, the results of from my tests so far, facts about other patients that have been toe-tagged at stage IV and have been living in remission for many, many years. I also go to my best friend, cheerleader and amazing husband and he always helps remind me how far I have come and I am day closer to beating cancer. I also turn to God and gain strength and courage from him and his word. My hope verse is, "For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future" Jeremiah 29:11. God whispered these words to me earlier today as I cried out to him and told him my fears.
Cancer wants to win. I want to win more. I will do whatever it takes to beat this and live as long as possible to do all the things I want to do and share my testimony with others. Cancer wants to steal my joy and try to rob me of having hope. It is a power struggle, but it is my faith that sustains me and hope that keeps me going.
So tonight, I pray.
The battle with cancer is not just physical. While we are fighting for our physical body, we are also fighting cancer in the emotional, spiritual and psychological realms. With every new ache or pain it comes with worry and fear is it the cancer? Is the cancer winning? It is spreading? Is the chemo and/or medications not working or no longer effective? Worry and fear are tools that the cancer uses to bring us down. It is attempting to use the fear to steal our joy and try to make us forget about the positives in our treatment and facts we do know to be true. This struggle can be daily for some, but it is always in the back of our minds.
It has always important to me to create memories for our daughter with special experiences as a family and even one on one with her parents. It is especially important to me now. What sucks is that when we come home from a fun day cancer likes to rear its ugly head and ask me when I will get to do it again? Will I be hear next year to take her to the event? Is this my last holiday with my family? My goal is that I will beat cancer and be here for as long as possible, but cancer likes to try to rob me from the happiness I have had making a new memory with my family with cluttering my head with worry. Then I pray.
It can even happen after seeing a commercial of a young girl in a wedding dress, or seeing kids graduating from high school. I think about being there for my beautiful daughter on her special days and see her grow up and raising her amazing family. My goal is to hold my grandbabies and hopefully my great-grandbabies like my grandfather who lived to be 91. As cancer tries to rob me from these special events, I pray.
My husband and I have a laundry list of retirement adventures. We started talking about this list when we knew it would be him and me forever. We have a trip to Paris, touring Strat-O-Matic and Scrabble tournaments around the USA, and countless other things on our list. These days Bryan and I might start talking about the future and the excitement for the future adventures with the man of my dreams can quickly dash as cancer tries to scare me I won't be here for those. It is then I pray.
I was told early on to be very careful about reading personal blogs online. Tread lightly. Most of the time they are extremely helpful as far as hearing from someone else that has walked in your shoes even if the details of their cancer is not the same, they still understand what "cancer" feels like. However, sometimes they can cause unneeded worry. Sometimes those details are important because the outcome may be vastly different from your journey. Even if everything IS the same, your body may respond differently from treatment and you end up with different out come. Comparison can be another tool cancer likes to use to cause worry and rob you of your fighting spirit. After reading another blog with devastating information or article of someone that died from this wretched disease. With tears, I pray.
My husband and I have a laundry list of retirement adventures. We started talking about this list when we knew it would be him and me forever. We have a trip to Paris, touring Strat-O-Matic and Scrabble tournaments around the USA, and countless other things on our list. These days Bryan and I might start talking about the future and the excitement for the future adventures with the man of my dreams can quickly dash as cancer tries to scare me I won't be here for those. It is then I pray.
I was told early on to be very careful about reading personal blogs online. Tread lightly. Most of the time they are extremely helpful as far as hearing from someone else that has walked in your shoes even if the details of their cancer is not the same, they still understand what "cancer" feels like. However, sometimes they can cause unneeded worry. Sometimes those details are important because the outcome may be vastly different from your journey. Even if everything IS the same, your body may respond differently from treatment and you end up with different out come. Comparison can be another tool cancer likes to use to cause worry and rob you of your fighting spirit. After reading another blog with devastating information or article of someone that died from this wretched disease. With tears, I pray.
I often feel guilty when I can't do something like play games with my daughter or unable to attend to attend events because I am overcome with pain or fatigue. Most people understand and don't guilt trip me and then there are others that don't get it and pass judgment. Cancer loves to blow those feelings and events way out of proportion. As we fight cancer, we will have limitations but they will pass. I also have begun to get creative about how to spend time with my daughter. I may not always feel up to running around, but we can snuggle and watch movies and read books. I even started a sketch journal with her. If cancer tries make me feel like an awful person because of the limitations it has put on me, I pray.
Sadly there are going to people that can't handle cancer and either walk away from us or we have to kick off cancer island because they cause too much stress and drama. I have had to remove a few people just because they are incredibly negative people. I have enough negative stuff going on, I don't need outside help with that. Cancer likes to remind us or sometimes other people like to judge us for making the choices we needed to. We are fighting for our lives and if we need to remove people for our own mental well-being we need to do it. Any time someone has made a comment about my choice I always say when you are fighting stage IV caner you can do that, but since I am the one fighting stage IV cancer I get to call the shots. Cancer likes to remind us that we "lost" these people and makes us feel bad. I pray.
Sadly there are going to people that can't handle cancer and either walk away from us or we have to kick off cancer island because they cause too much stress and drama. I have had to remove a few people just because they are incredibly negative people. I have enough negative stuff going on, I don't need outside help with that. Cancer likes to remind us or sometimes other people like to judge us for making the choices we needed to. We are fighting for our lives and if we need to remove people for our own mental well-being we need to do it. Any time someone has made a comment about my choice I always say when you are fighting stage IV caner you can do that, but since I am the one fighting stage IV cancer I get to call the shots. Cancer likes to remind us that we "lost" these people and makes us feel bad. I pray.
During treatment there are many tests to see how well the medications are working and making sure the results are coming to the desired results. Even the basic blood count tests can be nerve-wracking. Holding our breath as we wait to hear the results. For the same reasons with every new ache or pain, we worry about what we will find out. It's hard not worry. And it drives me crazy when someone tells me not to--especially when that person hasn't had cancer or even some type of health scare that could even remotely be compared to cancer. Unless you have had to face your own possible mortality, you really don't understand why it is hard not worry. Tonight, in fact, is the evening before I receive the results of my first scan. This scan will tell us what kind of progress, if any, the treatment has had on my cancer. It will also determine the rest of my treatment. I would lie if I said I wasn't freaked out. Cancer likes to swoop in and turn my thoughts to "what ifs". I work myself up and then I am on edge. I have prayed A LOT when my scan was scheduled and since it was taken. I am praying now.
It is a constant battle when fighting cancer at any stage, even after the cancer has been determined to be out of your body. I find it important to remind myself of how far I have come in my treatment so far, the actual facts about my chemo combo, the results of from my tests so far, facts about other patients that have been toe-tagged at stage IV and have been living in remission for many, many years. I also go to my best friend, cheerleader and amazing husband and he always helps remind me how far I have come and I am day closer to beating cancer. I also turn to God and gain strength and courage from him and his word. My hope verse is, "For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future" Jeremiah 29:11. God whispered these words to me earlier today as I cried out to him and told him my fears.
Cancer wants to win. I want to win more. I will do whatever it takes to beat this and live as long as possible to do all the things I want to do and share my testimony with others. Cancer wants to steal my joy and try to rob me of having hope. It is a power struggle, but it is my faith that sustains me and hope that keeps me going.
So tonight, I pray.
Saturday, November 15, 2014
How can you help?
I really don't know what it is like to watch a loved one or friend go through cancer. I can empathize what it must like. I can say it sucks--because cancer in general sucks. I am going to share what things have helped me so far on this journey. Keep in mind things that people have done for me, may not work for some one else since everybody is different. I can say that most of time, if you are truly trying to help it will be recognized, but please do not offer to make a meal and tell the patient they need to come and get it. That is not helpful.
One of the biggest things I have found encouraging is hearing someone is praying for me. Every time I hear that it just gives me such peace. I truly believe in the power of prayer. I have been told that friends and family have added me to prayer lists and that just humbles me. People that do not even know me are lifting me up to the healing power of Jesus. I have actually read that there are cancer fighters that do not like hearing people are praying for them. They have different beliefs and they find hearing it very offensive. So if you are not sure about someone's beliefs I would recommend asking if it is okay if you pray for them. As for me, I see it as one of the biggest things you can do for me. I truly believe in the power of prayer. I know it was through prayer God allowed a miracle to occur when I was hit by a motorcycle at the age of 3. It is also one of the reasons I share updates on my facebook page Team Mimzy. Those that are supporting me and wanting to pray for me can see my updates and offer words of encouragement there.
I am attempting to work part time through this and maintain my wife and motherly duties. However, meals are extremely difficult. Planning, shopping and cooking is often too much. Since my husband is not one that cooks, it makes dinner very interesting. It has been such a blessing when family and friends plan to deliver meals. It takes off so much stress and offers me more time to rest and kick cancer's butt. I have loads of dear family and friends that do not live nearby and have sent gift cards in lieu of a meal. Those are extremely helpful, too. My husband can pick something up on the way home and dinner is ready. We are able to spend more time together as a family--which right now is the most important thing to me.
Helping with errands and rides has been helpful. I have been on a variety of medications since the start and the side effects have been overwhelming. I can't always just hop into my car and drive to store or the post office. I have to pre-plan every errand. Sometimes my husband can pick up something I have forgotten, but sometimes he can't. It helps to have someone drive me or even offer to pick something up while they are at the store.
I need to get better at allowing people to help with the cleaning. I am working on it. But it is a huge help when I let people. Even just sweeping or doing the dishes, is a huge relief. My joints hurt all the time and those little chores are very taxing. We also have had people that have helped with lawn care and eventually we will need help with snow removal because it is approaching that time of year. It stunned me when people just offered to help with the lawn care and got it done. I know there are people that don't mind offering this kind of help, so if you are one of them, please offer it to your loved one.
I am so blessed that my daughter has so many people in her life that love her and adore her. They want to help in some way and offer playdates with their children or even transportation to events that our children are in together. It humbles me every time one of her friend's parents instinctively offer to help in this way. I am so incredibly thankful. Like I have mentioned before, with the side effects of medication and my body fighting for its life, it can be hard to find the energy to maintain all the events and fun stuff our daughter wants to be apart of. Just because I am dealing with cancer, I don't want it to mean she misses out on her childhood. It gives her an outlet and place to have fun with friends.
I am thankful for those that take the time to listen to me. I have so much going on in my head and sometimes I just need to get it out. I am not always looking for advice but more like reaching out and being real about cancer. Cancer sucks and it's nice to talk to someone that agrees that it does. Sometimes it is nice to have a break from the cancer talk and talk about music, games, current events--which include current events in friends' and families' lives. I am still a person and I still have interests. It gives me a much needed break from the back and forth in my own head.
Not that long ago I was having a very rough week. I felt horrible, worried, dealing with stupid people and just overwhelmed. A dear friend drove over 2 hours to treat me to a manicure. It was perfect. It was exactly what I needed. She asked what I had done for myself since we talked last and I couldn't really think about anything. I had been so focused on appointments and just daily activities I hadn't really done anything else. She checks in on me from time to time and it means so much. I need that. I need someone checking in on me and helping me get out of my head and living. I don't expect everyone to make such a drive, but just checking in on the patient and help remind them of who they were before cancer came into their lives.
Checking in on me is easy. Getting an encouraging email, texts, and such can do so much. Cancer is such an emotional rollercoaster and getting a message from someone shows they care. It gives me the extra fight I need to keep going. I have an great friend that lives on the other side of the country an she is great about texting me. She sent me a funny picture from her morning commute. I laughed so hard I ended up printing it out. I also have a cousin that is very routine with texts and pictures she sends. Just remember with the messages, I may not be up to returning the call or message. So be patient with this patient about getting back to you.
I love getting mail. I have gotten several cards and packages since I was first diagnosed. Each one means so much. We have also received packages for our daughter. My husband and daughter are going through this cancer battle, too. Just knowing someone took the time to send me a card and let me know they are thinking of me and my family means so much.
Early on in my diagnosis someone kept inviting me to things that I could never have gone to due to appointments and my new lifestyle would not allow me to do so. The person inviting me really hadn't thought through. I do appreciate the invites that comes with the details figured out--realizing I may not be up to it, I may need a ride or childcare. They also take into consideration my crazy schedule. So if you ware wanting to invite your cancer warrior, think it through and ask them about the details so they are able to attend if they are feeling up to it.
I was also thinking how comforting it is to have people that give the precious gift of understanding. What I mean is, I may be feeling great early in the day and then slowly go downhill. This may cause me to cancel plans or turn down invitations. Most of the time people have been great about it when I have to cancel or turn something down because they do understand that my condition is not predictable and I am going to have bad days. I would also ask that you give an extra dose of understanding if you call me last minute and ask to drop by or would like to meet up. These are harder for me to accept because most days I have already a schedule of events that I follow because at this point I know my energy levels. I must be saving my energy to do something later in the day and can't do both. I am so thankful for those that do understand.
If you have a talent or special niche like making hats or desserts or cleaning or whatever, offer your service. I was craving strawberry pretzel squares and after hearing that, a friend made it for me. I was so encouraged by her kindness. I don't always know what I need, and it helps when someone offers a service instead of asking me what I need help with.
I am incredibly blessed with so many wonderful people in my life that are trying to help make this dismal part of life so much easier on me and my family. Each gesture means the world to us and I am incredibly thankful for them and those that go out of their way for us.
One of the biggest things I have found encouraging is hearing someone is praying for me. Every time I hear that it just gives me such peace. I truly believe in the power of prayer. I have been told that friends and family have added me to prayer lists and that just humbles me. People that do not even know me are lifting me up to the healing power of Jesus. I have actually read that there are cancer fighters that do not like hearing people are praying for them. They have different beliefs and they find hearing it very offensive. So if you are not sure about someone's beliefs I would recommend asking if it is okay if you pray for them. As for me, I see it as one of the biggest things you can do for me. I truly believe in the power of prayer. I know it was through prayer God allowed a miracle to occur when I was hit by a motorcycle at the age of 3. It is also one of the reasons I share updates on my facebook page Team Mimzy. Those that are supporting me and wanting to pray for me can see my updates and offer words of encouragement there.
I am attempting to work part time through this and maintain my wife and motherly duties. However, meals are extremely difficult. Planning, shopping and cooking is often too much. Since my husband is not one that cooks, it makes dinner very interesting. It has been such a blessing when family and friends plan to deliver meals. It takes off so much stress and offers me more time to rest and kick cancer's butt. I have loads of dear family and friends that do not live nearby and have sent gift cards in lieu of a meal. Those are extremely helpful, too. My husband can pick something up on the way home and dinner is ready. We are able to spend more time together as a family--which right now is the most important thing to me.
Helping with errands and rides has been helpful. I have been on a variety of medications since the start and the side effects have been overwhelming. I can't always just hop into my car and drive to store or the post office. I have to pre-plan every errand. Sometimes my husband can pick up something I have forgotten, but sometimes he can't. It helps to have someone drive me or even offer to pick something up while they are at the store.
I need to get better at allowing people to help with the cleaning. I am working on it. But it is a huge help when I let people. Even just sweeping or doing the dishes, is a huge relief. My joints hurt all the time and those little chores are very taxing. We also have had people that have helped with lawn care and eventually we will need help with snow removal because it is approaching that time of year. It stunned me when people just offered to help with the lawn care and got it done. I know there are people that don't mind offering this kind of help, so if you are one of them, please offer it to your loved one.
I am so blessed that my daughter has so many people in her life that love her and adore her. They want to help in some way and offer playdates with their children or even transportation to events that our children are in together. It humbles me every time one of her friend's parents instinctively offer to help in this way. I am so incredibly thankful. Like I have mentioned before, with the side effects of medication and my body fighting for its life, it can be hard to find the energy to maintain all the events and fun stuff our daughter wants to be apart of. Just because I am dealing with cancer, I don't want it to mean she misses out on her childhood. It gives her an outlet and place to have fun with friends.
I am thankful for those that take the time to listen to me. I have so much going on in my head and sometimes I just need to get it out. I am not always looking for advice but more like reaching out and being real about cancer. Cancer sucks and it's nice to talk to someone that agrees that it does. Sometimes it is nice to have a break from the cancer talk and talk about music, games, current events--which include current events in friends' and families' lives. I am still a person and I still have interests. It gives me a much needed break from the back and forth in my own head.
Not that long ago I was having a very rough week. I felt horrible, worried, dealing with stupid people and just overwhelmed. A dear friend drove over 2 hours to treat me to a manicure. It was perfect. It was exactly what I needed. She asked what I had done for myself since we talked last and I couldn't really think about anything. I had been so focused on appointments and just daily activities I hadn't really done anything else. She checks in on me from time to time and it means so much. I need that. I need someone checking in on me and helping me get out of my head and living. I don't expect everyone to make such a drive, but just checking in on the patient and help remind them of who they were before cancer came into their lives.
Checking in on me is easy. Getting an encouraging email, texts, and such can do so much. Cancer is such an emotional rollercoaster and getting a message from someone shows they care. It gives me the extra fight I need to keep going. I have an great friend that lives on the other side of the country an she is great about texting me. She sent me a funny picture from her morning commute. I laughed so hard I ended up printing it out. I also have a cousin that is very routine with texts and pictures she sends. Just remember with the messages, I may not be up to returning the call or message. So be patient with this patient about getting back to you.
I love getting mail. I have gotten several cards and packages since I was first diagnosed. Each one means so much. We have also received packages for our daughter. My husband and daughter are going through this cancer battle, too. Just knowing someone took the time to send me a card and let me know they are thinking of me and my family means so much.
Early on in my diagnosis someone kept inviting me to things that I could never have gone to due to appointments and my new lifestyle would not allow me to do so. The person inviting me really hadn't thought through. I do appreciate the invites that comes with the details figured out--realizing I may not be up to it, I may need a ride or childcare. They also take into consideration my crazy schedule. So if you ware wanting to invite your cancer warrior, think it through and ask them about the details so they are able to attend if they are feeling up to it.
I was also thinking how comforting it is to have people that give the precious gift of understanding. What I mean is, I may be feeling great early in the day and then slowly go downhill. This may cause me to cancel plans or turn down invitations. Most of the time people have been great about it when I have to cancel or turn something down because they do understand that my condition is not predictable and I am going to have bad days. I would also ask that you give an extra dose of understanding if you call me last minute and ask to drop by or would like to meet up. These are harder for me to accept because most days I have already a schedule of events that I follow because at this point I know my energy levels. I must be saving my energy to do something later in the day and can't do both. I am so thankful for those that do understand.
If you have a talent or special niche like making hats or desserts or cleaning or whatever, offer your service. I was craving strawberry pretzel squares and after hearing that, a friend made it for me. I was so encouraged by her kindness. I don't always know what I need, and it helps when someone offers a service instead of asking me what I need help with.
I am incredibly blessed with so many wonderful people in my life that are trying to help make this dismal part of life so much easier on me and my family. Each gesture means the world to us and I am incredibly thankful for them and those that go out of their way for us.
Wednesday, November 5, 2014
Dear Cancer a letter to my cancer from my daughter
When I was diagnosed with cancer, my husband and I decided that we would not hide it from our daughter. Yes, she is only 6, but we felt she had a right to know what was going on with me. We have spared her from the boring details that she wouldn't understand, but we have remained honest with her. If she has questions we answer them in way she can understand. She knows I have stage IV breast cancer. She knows that I am in chemo and so far it seems to be working. She knows I have good days and bad days. She knows I am not always up to playing and is very forgiving. She also knows I love her very much and she is one of the reasons I am fighting this cancer. When I look into her eyes, I know I can't give up this fight.
We had her participate in a special group offered by the cancer center for kids who had loved one that is battling cancer. She got to see how some of treatments are given, like radiation, how chemo is made and even gave out cookies to those receiving chemo. She got to talk about how cancer makes her feel. I am glad we were able to give her that opportunity. I think it helped seeing what I have gone through and what I am going through and place to ask questions that she had.
I asked her what she would like to say to mommy's cancer. She gave a scowl. I know that look. She hates cancer. She wants it to leave and not come back. She wants her mommy to be healthy. She doesn't like the unknown we face while we battle cancer together. I told her she could write a letter to my cancer and tell it whatever she wants. She liked that idea.
This is her letter.
![]() |
| "Dear Cancer, I do not like you. You are a butt. You are a brfff brfff (sticking tongue out) You are a pee." The drawing is her saying, "I don't like you." Cancer says," I don't care." She says,"OK!" |
I told her it okay to feel those things about cancer and say those things to my cancer. Because, it is. It is healthy to write our feelings about things that are trying to hurt us and even share them and talk about them. She went from somber when writing it to a happy kid because she got to call cancer a butt. She knows it's not okay to call people those names (even if they are lol) but for cancer it is more than appropriate.
We also talk about when we are feeling upset and worried about mommy's cancer that she can talk to God. We use the scripture, "Casting all your care upon him; for he careth for you." 1 Peter 5:7. I know she does find comfort in prayer and that is so encouraging to me as her mother. It is where I find my comfort as well.
I know God has a plan for my daughter which includes my cancer. Right now she wants to be a cancer doctor, but that very well may change. However, she will gain a compassion for those suffering and going through a terrible ordeal that can only be gained from her own experience. God will use this in her own young life to bring glory and honor to Him. This cancer will shape her into the amazing young woman God desires her to be. I am looking forward to seeing God work in her life and by his amazing grace I will be here to watch it all unfold.
Subscribe to:
Posts (Atom)



